Project 365 day6 My Tyler

This is my son Tyler. He is 11 years old and he has Autism. We went to two different doctors appointments today, like we do a lot. Tyler suffers from severe delays, including speech, development, and motor skills. His doctor also suspect he may have a rare disorder called Smith Magenis syndrome. If you have never heard of it, you should look it up. SMS is a new genetic disorder and needs more community awareness and support. Tyler is quite the handful, but a great blessing. He has a great sence of humor and a pure innocence that allows him to enjoy everyday of his life.

I would have to write an entire book to fully explain Tyler, and one day I might just do that. Our family life style is different because of his behavior and developmental problems. Many people who do not have a special needs child in their life do no understand how it affects a family’s day-to-day life. For example, public outings can be a great challenge, childcare is almost impossible; unless you have supportive family that can help. On the up side, through his eyes we get to experience true joy. His ability to love the small things in life is amazing.

What I love most about Tyler, is his ability to be completely real. He is never fake, deceiving, or ashamed. You always know exactly how he feels. He doesn’t hide his smile when he thinks something is funny, he doesn’t hold back when he is angry, and tears stream freely down his cheeks when he is sad. We could learn a lot about life from people like him.

 

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2 Responses to “Project 365 day6 My Tyler”

  1. thanks for visiting, looking forward to a great year of photos in 2012. thanks for sharing your son’s story too 🙂

  2. momthewriter Says:

    Thank you for the comment. 🙂

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